Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Tuesday, December 7, 2010

I have such a heavy heart today for the loss of another child to Rett Syndrome.  Aidan O'Rourke lost his battle with Rett Syndrome this morning.  He was the sweetest little 3-year-old you would ever meet with a smile that could melt your heart.  Abby and I were honored enough to meet Aidan and his mom a few months ago.  He was such a special little boy who will be missed by everyone who knew him.  While I am happy for him knowing he will finally be free and will no longer have to fight this battle, I can't imagine the loss that is being felt by his family.   Please keep them in your prayers.
    
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4 comments:

  1. EricaDecember 7, 2010 at 10:35 AM

    oh ann marie-i had forgotten that you had met them. its just TOO SAD.

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  2. mjDecember 7, 2010 at 12:15 PM

    I'm so sad to hear that. My prayers are with their family.

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  3. DawnDecember 7, 2010 at 12:59 PM

    Oh man, it must be even more difficult having met him and his family. This is such a sad day. :(

    ReplyDelete
  4. TeresaDecember 7, 2010 at 3:22 PM

    I am so sorry to hear this. I know you were excited that you got to meet him. He is in the Lord's arms now.
    Will be praying for his family.

    ReplyDelete

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