Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Monday, August 9, 2010

Camera shy? not so much

That smile....I love it!

I had to post a video of Abby walking around today.  She was so happy to have a little freedom.  I am usually holding her hand or the back of her shirt.  She was steady today, so she got to walk around without help.  She still likes to stay close, though.  I think she knows that she might fall. I can tell when she is getting ready to have a spell by the look on her face and the way she starts to shuffle her feel.  When it starts, she tries to walk over to me  (or whoever is nearest).  Its so smart that she knows to get near someone who can catch her.  We need to get these falling spells under control, but in order to do that, we need to figure out why the heck she is having them.  We see Dr. Percy at the Rett Clinic next Friday, so hopefully he can give us some insight and suggestions.  

She is definitely my little diva.  When we are outside, she wants to be in the pool-in her chair-in the shade.  I don't blame her, though, it has been SO hot!
This is pretty much all Logan wants to do.  He is obsessed with balls now.  


  1. Avery and I just watched the video-lots of smiles over here!

  2. Loved the video. Reminded me of one of Abby when she was 4. Didnt know if you'd seen it.