Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Tuesday, March 30, 2010


Yesterday, I was sitting on the floor while Abby was walking around playing with her toys.  She came up to me, and hugged me.  Abby gave a hug.  This is huge.  For those of you who get hugs every day, this may not seem all the monumental, but believe me, it is.  I got my first one last week (made me cry).  I mean, a huge, arms-around-the-neck-and-squeeze kind on hug!  She has given small ones before, where she taps our back, and we assume she is trying to hug, but this was so different.  It was a rare glimpse of her body doing what her brain tells it to do.  She raised her arms, put them around my neck, and squeezed.  That's quite an accomplishment.  It has made my day week.  Keep them coming, Abby! 

She also went back to school yesterday and had a great day.  Her teachers said she was all smiles all morning.  That makes me so happy to hear.  She starting having periods during the day where she won't swallow on Sunday, but not nearly as much as last week.  I am thinking maybe she has a scratchy throat still?  I don't know.  She is happy, though, so that's enough to make us happy.  She is doing awesome using her left hand, after having it in a cast for a few weeks.  She made choices well at school, and she was finger feeding great when she got home.  Go Abby!  Her left hand is, by far, her dominant hand, so it's good that she is using it again.  She doesn't use her right hand for much, other than mouthing and patting.


  1. Oh, Ann Marie, how wonderful! I love my hugs, but hearing about Abby giving you one - that is so, so special. I love it, and thank you for sharing that precious moment! :)

  2. thats awesome! Avery has been a bit more huggy lately too. but not near like Abby's! how exciting. I got tears in my eyes!

  3. God is so good! Something so simple as a hug means the world- I am so happy that she hugged you... she's such an angel!!!

  4. I am so happy ...cant even tell you how happy. Such a simple confimation of faith and love, that says so very much ...