Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Tuesday, March 2, 2010

Purple Princess

After one week with a cast, Abby is adjusting very well. For the first few days, she would not move her arm at all. Now, she is knocking it into everything. Her accuracy isn't great, but she's making it work. Unfortunately, she puts her hand to her mouth and her forehead a lot, especially when she is tired. The cast is pretty heavy and rough-not something you want to hit yourself in the face with. We have covered with with mittens and socks to make it softer, and tuck it in at night to prevent her from tapping her head in her sleep. Other than that, it doesn't seem to be bothering her too much.

Abby stayed home from school today because she was up A LOT last night. I'm not sure what the deal was, but she was very restless. When she doesn't sleep much at night, I don't send her to school the next day. It seems like we just can't get back into a routine. I don't think she has been to school more than 1-2 days a week since December. That's probably why she's been more upset at school lately.

Today I babysat, so she got to hang out with her cousin and a few friends. Even though Abby does not interact with other kids in a typical way, I can tell she enjoys their company, especially at our house (where she is most comfortable). When I can facilitate games with everyone, she interacts and is so happy. She gets a kick out of Ring Around the Rosie.

The kids played Pretty Pretty Princess. It's fitting that Abby chose to be the purple princess, to match her cast and glasses I'm sure.
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4 comments:

  1. LysanaMarch 3, 2010 at 2:04 PM

    Hee hee! Very cute! I love the picture of all the kids at the table. I know my kids had a lot of fun there yesterday!

    I'm sorry she isn't sleeping well - is that getting any better?

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  2. TeresaMarch 3, 2010 at 5:50 PM

    I love our little purple princess!

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  3. Ann MarieMarch 3, 2010 at 6:12 PM

    They did have a good time, Kelly. By the way,I realized tonight that I have 2 kitty's on our dining room table. I guess you have others? Abby was home again today because she was up a lot last night. She usually sleeps very well at night, so hopefully its just a phase of some sort. Maybe her cast is itchy/irritating?

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  4. LysanaMarch 4, 2010 at 10:28 AM

    Oh no about the Kittys! I'll check with Craig - so far, we haven't had a Kitty Emergency, but there could be one in the making. Maybe we can get over there sometime in the next day or two to pick them up, if there's a time that works with your schedule.

    I have never worn a cast, but you may be onto something there. It might be causing her some sort of discomfort that's keeping her from sleeping. :( I hope not, and I hope she is sleeping better soon!

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