Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Wednesday, March 17, 2010

Abby had her Speech and Physical Therapy evaluations at Kids Center today.  She gets her OT there already, but she was receiving her PT at a center that offered hippotherapy as well.  Our insurance has changed, so we're having to switch to a participating center.  Anyway, it went well.  I really liked the PT that did her eval, so hopefully Abby will be put on her schedule.  She will get both Speech and PT weekly.  Our appt. with Susan Norwell has be rescheduled for next month.  I talked to the speech therapist today about collaborating with Susan, and following the plan she gives us.  Here are a few of the things that she will be working on in PT and Speech:

Physical Therapy
- improving balance (walking on uneven surfaces, ramps, etc.)
- transitions (chair to standing, standing to sitting, laying to sitting, etc)
- stairs- (always hopeful)
- protective reflexes (exercise ball)
-finding an appropriate mobility thingy? - maybe a convey stroller?  Abby is getting too long for her strollers, so some time in the next year, we will get something that will be more appropriate for her.  For now, I use the double stroller....I only have so many hands to push.  She walks great at home and on pretty even surfaces, but there are lots of times where she needs a lift.
- baring weight on hands (crawling, all fours, etc.)

- using eye gaze to make choices and object identification
- additional goals will be added as Abby starts her therapy

The craziness of the past few months has made for a break in therapy, but it's time for the girl to get back to work.
This evening, Abby and Logan hung out with their cousin, Kiley, at the park.  Kiley is great with the kiddos, and they love her so much.

1 comment:

  1. Sounds like she has a lot going on...you are doing such a great job with her! I am praying that she will excel at everything!