Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Monday, March 22, 2010

Under the Weather

Abby hasn't been feeling well the past few days.  She started running a fever on Saturday, and starting coughing on Sunday.  Today, Monday, she still has a fever and is pretty congested.  I have taken her to the doctor twice, but they say its a viral infection and should last only a couple days.  She is also not swallowing very well.  It's wierd.  She eats and drinks normally, but she will not swallow her saliva.  Her mouth is closed tight most of the day, and has been since last Sunday.  If I pry it open, it is full of saliva.  What the heck, right?  I have had her throat checked twice, assuming her throat was soar.  I am hoping whatever is making her feverish is also making her not want to swallow.  I'm not writing off the swallowing issue as a "rett" thing just yet.  If she is still not feeling well tomorrow, I'm taking her back to the doctor.  I have a hunch there is more to it than a virus.  Yes, I'm one of those parents.  Three times in 6 days.  She just looks so pitiful, and very uncomfortable when she is trying not to swallow. If only she could tell me what hurts....          


  1. oh man ann marie. im with you though on never feeling sure when the Dr says oh its nothing! we went through that with Averys delays so Im always skeptical. I hope she feels better fast and that yu can figure out the saliva thing. poor abby. and mom. hugs!

  2. mariah was just in the hopsital, with fever, vomitting, and unknown pain(whining/crying)...they diagnosed her with mesenteric lymphadenitis. there are lymph nodes in our intestines, and hers were inflammed...similar pain to appendicitis. always trust your motherly instinct, and bring her in...goodluck!

  3. Sometimes you have to go to the doctor over and over again with kids. You just do. And I would especially think so with Abby, since I think she can have complications from illness that other kids are less likely to have. Keep going back as much as you need to (although paying the co-pay each time does stink). :(

    I guess if you're one of "those" parents, then I am too! I hope she is feeling better soon.

  4. We love you even more because you are one of "those" parents!!
    Praying she feels better soon!