Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Monday, January 25, 2010

We are trying to get used to our new "normal". We still get upset when she seizes, but not as much as before. When a child is sick, seizures are more difficult to control. We are hoping that is just the case with Abby. She is having a few seizures when she sleeps, but much fewer than last week. We think that they will stop when she gets over her bronchial infection and stomach bug. That is our hope, anyway. We are very new to this, and aren't really sure what to expect. Should we expect for her to have no seizures at all when she takes the right medicine? The most upsetting thing is that she is still so weak, unable to walk or hold herself up. While we expect for her to gain her strength back, it's hard to see her so helpless. It's also a little tricky taking care of miss Abby and Logan. Since she usually seizes when she sleeps, someone has to be with her when she is sleeping. We are so thankful that Abby's Nonnie has come in town to help out. My mom had Logan last week while we were at the hospital, and now Nonnie is staying with us. It's great having so much help and support.
We love having Nonnie stay with us. We sure will miss her when she goes back to Texas!


  1. Lots of love. Thinking of you guys, and let us know if there is anything we can do.

  2. Glad yall have alot of help. We are all still thinking of yall and praying,
    Stacy,Kent,Keith,Adrienne,Kelly, Kirk, Sarah,Shari and Gary and Cynthia.. just everyone really,,,
    huggs and kisses..