Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Sunday, November 8, 2009


Today was extraordinarily beautiful outside, so we took advantage. We raked leaves after church and went on a bike ride. This was the first time we took Abby on a ride in a while. She usually doesn't like it. We thought we would try again, and I'm glad we did. Once we got going, she was all giggles. Hopefully we will have a few more nice days so we can go again.

I wanted to brag about how well Abby is doing with her spoon. We support her at the elbow, and at the end of the spoon when needed. She used to need help getting the spoon to he mouth. Now, after having help loading the spoon, she moves it to her mouth by herself. We have to hold the end of the spoon most of the time to keep the food on it, but she knows the motions of putting it to her mouth. We have her do it for about 10 minutes, and then we feed her the rest so she doesn't get too frustrated and resist eating the rest of her meal. She's big stuff!

2 comments:

  1. That is fantastic! Look at her feeding herself! :) And the bike ride sounds like fun. Both of your kids are adorable!

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  2. Thanks Kelly! Have a great time in Disney World!

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