Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Thursday, November 26, 2009

Happy Thanksgiving! There is so much to be thankful for this year in our family. We are thankful for our two little kiddos. Abby and Logan are both doing great. Logan is now 10 months old and is such a blessing. Abby has had a great year. She has started so many new things and is doing better than I could have imagined in school. We are growing increasingly concerned about complications with Rett such as scoliosis and seizures as Abby gets older, but she hasn't had signs of either. We are so thankful for her health and pray that she is able to continue doing so well. We also pray for all the other kids with Rett who are struggling with more complicated health issues. We are also so thankful for all our friends and family. Abby is truly blessed to have such great grandparents, aunts, uncles, cousins, and friends. We spend the day today with many of these people. We eat with my family today, and visit Abby Papaw and Memaw on Saturday. Abby was a little fussy with the crowd, but she coped pretty well.

I gave her choices of what she wanted to do while we were at the party. Of course, she chose to watch a DVD of Little Einsteins every time. I am posting some photos of her communication cards I made for today. She uses her eye gaze or her hand to make a choice.

These are some of Abby's favorite activities right now. Today, she only wanted the DVD, but she usually likes all of them.

This card can be used to help Abby communicate why she is upset. It has a sippy cup, snack, potty, and her blanket. The only problem is that when she gets too upset, she doesn't want to look at the card, but we are working on it.

1 comment:

  1. Hi there!
    I found your blog through Google Rett alerts and after reading several of your posts it seems as though your cutie and my cutie have a lot in common. Avery was just diagnosed on 11.09.09 and she was born in july of 2006. late developer and we just thought that she would catch up. but then right around her third b-day she started with the repetitive hand movements. I'd love to chat with you over email or facebook (Imm Erica Bessey Robertson) if you are on there. We live in northern CA. thanks for sharing your story-you can find ours at therobertsonstoday.blogspot.com