Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Wednesday, November 4, 2009

Abby has had a great week! At school yesterday, she responded "no", when asked a question. There have been several times when I have heard words pop out, only to convince myself that maybe I was hearing things. It's great when others hear words, too. They also they heard "mama", "dada", and "moo". It's so exciting when she says words. It doesn't happen too often, but when it does, it's amazing. I hope so much that she will be able to talk someday. I think that is the most difficult part of her diagnosis right now. I'm around a lot of 3 year olds, and they have a lot to say. I can't help but think that she has lots to say, too. I can't imagine not being able talk for even one day. She is one patient little girl.

She worked on using her hands with her occupational therapist today. She doesn't have much functional use of her hands, but she is able to grasp (primarily with her dominant hand) for a short period of time. She has been working on holding on while she swings. Today, she held on for longer than a minute without letting go. She also has been working on using her legs and arms to roll. We put her on a soft ramp, and help her roll down. She doesn't love it, but she's a good sport.

1 comment:

  1. That is such fantastic news, Ann Marie. Both about the words and about her holding on. I hope you are all having fun today!