Broken Wrist

I have decided that Abby is about the toughest little girl I have ever met. Last night, she lost her balance in Logan's room and fell forward. She tried to catch herself on his crib, but she still fell down. She cried a little, but was consolable. She ate a decent dinner, and then played as usual. Later that night, she was pretty cranky. We thought it was her acid reflux, but I checked her arms and legs to make sure she didn't hurt herself when she fell. I poked and prodded all over her hands and wrists. She didn't seem to be at all bothered. This morning, while she was eating breakfast, we noticed she wasn't moving her left arm, which is very unusual. She usually pats her chest with both arms. Knowing that her pain tolerance is abnormally high, we took her to have an x-ray. Sure enough, she has a broken wrist. It wasn't swollen, but the more they touched it, the more tender it must have felt. She will have a cast for 4 weeks (purple, of course). She was in a great mood all day. What a trooper!

Unfortunately, the hand that is fractured was her left hand. She uses her left hand to make choices and push the buttons on her toys. So far, with the cast on, she won't do anything with it. We are a little fearful that restricting it's use will affect the little function she does have in her left hand, but praying that forcing her to use her right hand will make that hand stronger than before.

Matching Puppies!

Logan loved Abby's puppy, so we got him on for his birthday. They both love to listen to them, especially at bedtime. So cute!



***If anyone happens to be up at 1am (in Louisville), there is a program on PBS that will be featuring Rett Syndrome. It is a Charlie Rose presentation about the brain. The time is different in different areas, so check with your PBS station to find out what time you can watch it. Hopefully, I won't be up that late, so we will have to record it.

Logan's Dedication and B-day

We had a very belated B-day party for Logan on Sunday, after his dedication at church. Abby was having a rough time on his Birthday, so we rescheduled the party a little. He was very happy to be the center on attention, loving every minute of it. He also did well for the dedication. We go on stage with a lot of other families for about 5 minutes. That doesn't seem too long, but when Logan wants to get down, you either put him down or he screams. Neither would have been a good idea on a stage in front of a couple thousand people, so we were happy that he was distracted by all the people and lights.

The purpose of the dedication is to give parents (and the church family) an opportunity to formally commit to raising their child to know and accept Christ. It's a good reminder to us of what really matters when it comes to raising our kids. It's too easy to focus on keeping them happy and healthy, especially when keeping them happy and healthy is a challenge. Of course we want them happy and healthy, but that's not the most important thing.

I thought so much about what we wanted for Abby when we first received her diagnosis. Most of our dreams for her were crushed, but we had to think about what we really wanted for her. It is hard not to dwell on all the things that we want to her do and experience. Most of all, however, we wanted Abby to have a relationship with Christ. And that was the one dream that wasn't crushed. I figure, Abby's relationship with Christ must be special. He is the only one who knows her thoughts, and understands her in a way that no one else does. Of all the communication strategies that we will teach her, nothing will be more important than teaching her to communicate with her Savior.


Train a child in the way he should go, and when he is old he will not turn from it.
-Proverbs 22:6

First Orthopedist Visit

Abby went to her first orthopedist appointment yesterday. Our pediatrician told us a few weeks ago that he thought her spine was curving a bit to the right. Scoliosis is very common with Rett Syndrome, so we had an x-ray done to check it out. After looking at the x-ray, the ortho. told us that her spine is straight, no curve at all. We won't have to go back unless there is a concern later. Yay! Praise God for some very good news!!!

More Snow!!

We have enjoyed our snow day today. Abby has had a good day, no seizures to write about since Friday. Yay! She is still pretty unsteady and tired. She is very cuddly, though, which is soooo sweet. Adjusting medicine is not fun! I hope she sleeps well tonight, so she can go to school tomorrow. She has only been a few days this month, and she will have to miss on Thursday because of an appointment. What a crazy month! I know she misses her teachers and therapists!


We need to get Abby's glasses fixed.... again. It's a good thing we are right down the street from the optometrist. It seems like we are there every week! Abby is doing a great job of keeping them on, now its Logan who is REALLY wanting to get his hands on them.

Research to Reality

The International Rett Syndrome Foundation has recieved a one day donation for add space on the MSNC website. The site averages over 3 million views per day, so this is a great opportunity to get the word out out our cause. On Feb 24th, go to their website, www.msnbc.com, and show your support at whatever level feels good. It's a great time to give because donations will be matched, as a part of the new campaign, Research to Reality: Funding Progress. Please help Abby and everyone else suffering with Rett Syndrome. We need your support to make a cure a reality!


Visit www.msnbc.com Wednesday, Feb 24th to show your support for Rett syndrome

How time flies!

February 2007



February 2008



February 2009



February 2010