Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Monday, February 22, 2010

Logan's Dedication and B-day

We had a very belated B-day party for Logan on Sunday, after his dedication at church. Abby was having a rough time on his Birthday, so we rescheduled the party a little. He was very happy to be the center on attention, loving every minute of it. He also did well for the dedication. We go on stage with a lot of other families for about 5 minutes. That doesn't seem too long, but when Logan wants to get down, you either put him down or he screams. Neither would have been a good idea on a stage in front of a couple thousand people, so we were happy that he was distracted by all the people and lights.

The purpose of the dedication is to give parents (and the church family) an opportunity to formally commit to raising their child to know and accept Christ. It's a good reminder to us of what really matters when it comes to raising our kids. It's too easy to focus on keeping them happy and healthy, especially when keeping them happy and healthy is a challenge. Of course we want them happy and healthy, but that's not the most important thing.

I thought so much about what we wanted for Abby when we first received her diagnosis. Most of our dreams for her were crushed, but we had to think about what we really wanted for her. It is hard not to dwell on all the things that we want to her do and experience. Most of all, however, we wanted Abby to have a relationship with Christ. And that was the one dream that wasn't crushed. I figure, Abby's relationship with Christ must be special. He is the only one who knows her thoughts, and understands her in a way that no one else does. Of all the communication strategies that we will teach her, nothing will be more important than teaching her to communicate with her Savior.

Train a child in the way he should go, and when he is old he will not turn from it.
-Proverbs 22:6


  1. Wow... I am so grateful to have you in my life! I love that you know the love of Christ and that Abby and Logan have you and Wes to bring them up in a loving Christian home.
    Abby and Logan are a GIFT from HIM!!!
    It's hard to imagine loving anyone more than Abby and Logan but HE does- he knew and loved them before they were born. Blessings from the Father!! :)