I should have known better than to assume that anything with Rett Syndrome would go the way that I expected. We dropped Abby's Keppra a little to see if she could tolerate a lower dose. She could not. I figured that we would increase it to the original dose, and they would go back under control. Seems reasonable, right? Not so much. She is having weird episodes several times a day and it has been a week on her original dose. She stares into space for a moment and is non-responsive. Then, her lips turn blue, she gets jittery and spastic, and then falls asleep for about an hour. Weird. I know that if I call the doctor, he will want to either have us admitted for a 24 hr EEG or increase her Keppra. That was exactly the OPPOSITE thing that I wanted to happen when we tried to lower her meds. Rett Syndrome is the exception to every rule and it's driving me crazy. Its an unsolvable puzzle. The more I try to help, the worse things get. How is that even possible?