Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Tuesday, September 7, 2010

So much good news!!

I am so happy right now.  First, Abby got off the bus with the same dry diaper that she got on the bus with over 4 hours ago.  Wow! Without words, she can communicate to her teachers that she needs to go potty.  She's pretty amazing.  Then, after eating lunch and going on the potty again, she went to sleep-and so did Logan AT THE SAME TIME.  So, I'm sitting here in quiet reading a book, which is awesome, when the phone rings.  The voice on the other end wants to discuss Abby's approval for the Medicaid Waiver!!! This means she can restart speech therapy right now and start the paperwork to get her a communication device.  She can start hippotherapy again and we won't be left with so many copays and deductibles.  Also, it will also give us respite and will lift a huge financial burden of medical and prescription expenses!  We have insurance, but they aren't paying for all the services that Abby needs, so this is such great news.  It's a lot to think about, but I AM SO HAPPY RIGHT NOW!!!


  1. I love days that seem to have everything going your way! That's great news about the Medicaid Waiver...we are still going through the final steps of getting Reagan approved and hopefully will be done by the end of the month. I hope the rest of your week is HAPPY also! :)

    We got Avery the waiver months ago but to get MediCal to call me back is taking forever! yippeeeeee for Abby and her dry diaper too!
    Avery told me via her step by step today that she peed on the potty at school! sweet! love all this goodness!

  3. YES!!!! What awonderful day! Such great news! Soo happy about the waiver and Abby with a dry diaper - What an amazing little girl!!! Thanks for sharing the goodness!

  4. I love it! Go Abbey!!!! Getting the waiver news while both kids are sleeping would put me over the top with joy and I would probably pee my pants! So glad that you had such goodness.