Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Friday, January 29, 2010

Abby seems to be feeling better. She is over the stomach virus and the bronchial infection. She hasn't had a seizure in 3 days. Yay!!! In fact, she is sleeping right now, in a room all by herself (for the first time in 2 weeks). Of course, we have invested in video monitors to keep an eye on her while we are awake and she is asleep. It's not a perfect system, as we still don't know how to let her sleep in her room while we are sleeping in our room. We definitely wouldn't hear her seize, and of course, we wouldn't see it on the monitor while we're sleeping. These past few weeks have been the first times she has ever slept in our bed. She really likes her bed in her room. We all like her in her bed in her room. Three is definitely a crowd. I'm sure she is more than ready for me to give her some space. She doesn't need to say it, her face tells it all. It has "mom, get a life" written all over it. That's my girl.

Abby did much better sitting up today. She can sit up for about a minute without falling, which is a big improvement from earlier in the week!

1 comment:

  1. Hope you feel MUCH better real soon Abby - Brooklyn is down with strep throat right now :(