Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Wednesday, March 2, 2011

So the last time I posted about seizures I was very frustrated about how long it was taking for Abby to respond to the increase in her seizure medicine.  Well, it took nearly 10 days, but they seem to be back under control.  In hindsight, that makes sense, but when she has a rough day of seizure activity, I get frazzled and very impatient. I'm trying to relax and enjoy the good news.  She doesn't have scoliosis and she isn't having seizures (right now).  And on top of it, she was really "with it" today with her motor planning.  We walked up the stairs, and she raised her leg about 10 times.  She didn't just do it one stair climb, but every time we went up the steps!  She also did awesome bearing weight on her arms tonight.  She stayed on all 4's for several seconds before attempting to sit.  Wow.  There's more.  When we went outside, she walked around our big circle holding my hand.  Sometimes she doesn't have the endurance to finish, but not today.  I know it takes a lot of work for Abby, and I can tell that she is happy with herself when she gets her body to do what she wants it to do.  So proud of that little girl!

6 comments:

  1. go abby go! yay for medications doing what they are supposed to. its such a fine line to get them where they need to be-but when it works-AWESOMENESS!

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  2. Yay ABBY! YOU ROCK GIRL!

    Great job to Momma too, because that is really hard to wait for. xoxo

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  3. hooray for good days like this. here's to hoping they come more often. nice job both of you. :)

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  4. I love all the good news and big round of applause to sweet Abby for being such a superstar!

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  5. What a great day! Makes my heart smile for both of you :)

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