Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Sunday, July 11, 2010

So Grateful!

Through all the pain that Rett Syndrome has brought, I must say that is has enabled us to see such love and compassion in others as well.  The support and encouragement from our family and friends is amazing.  Abby is in the prayers of people who we have never even met.  She was just received two beautiful dresses in the mail from across the country from a woman who has never met her, although the woman has been praying for her for the past two years. How cool is that? 

Last week, a good friend of mine told me that she wanted to make a donation to help with Abby's medical expenses.  I was speechless!  I have raised money to find a cure, but not specifically for Abby.  I am so grateful that we have friends family who love our little girl. When Abby was younger, she had everything she needed through our early intervention.  We have just recently been searching for other sources of funding for some of her therapies that our insurance is denying.  It is a quite an expense, considering the frequency and communication equipment that she will need.  It is amazing that a donation has been made before we even set up a fund.     

I want to thank you all.  We don't take for granted your words of encouragement, your kindness, and your generosity.  Knowing our friends and family are not only joining our cause, but that they are also thinking about ways they can make Abby's life better is humbling. We are so grateful! 




  1. There aren't words to describe how much we love Abby! Everything about her has been a gift from God.
    If there is ever a way we can help- we will do it at the drop of a hat!
    Love you all!

  2. I came across your blog today. Abby is just so cute! My girl seems to have Rett also. She is 14 and the love of my life. Just wanted to say hi!