Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Monday, May 17, 2010

Carnival Fun!

Tonight, we took Abby to an AAC carnival, where she is getting her physical and occupational therapy. The carnival is put on by Kosair Charities. Abby was given a VIP (Very Special Communicator)sticker when she entered. All the activities were set up for nonverbal kiddos, so it was pretty cool. She had a great time. She still needed help, as she is just starting to use the symbols, but it was a great event. They also had some tables set up with AAC devices for us to check out.

It wouldn't be a carnival without cotton candy.

Abby made a sand art necklace, using the communicators to pick the shape and colors.

She especially liked feeding the elephant peanuts and getting a treat in return.

We also had Abby's 4-year well check today. It's nice to go to the doctor without any immediate issues. Her seizures are under control. The acid reflux seems to be okay,and she's not having any other health issues. Yay! She even rolled over this week for the first time in almost a year. In phase 3 of Rett, lost skills can be gained. Maybe Abby is going to start gaining back some of those things that she could once do. I hope so. It does seem like she is having a little better control of her motor skills lately.


  1. That is awesome, Ann Marie! The carnival looks like it was a blast, and how neat that she seems to be regaining some of her lost skills! I'm so happy for you guys. She is an amazing little girl, and you are wonderful parents for her. :)

  2. What an AWESOME Carnival!!! Very cool idea! Cotton Candy is a favorite here too :)