Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Saturday, December 19, 2009

I haven't posted in a while because we've been quite busy. Abby has been doing well. She is now out of school for her Christmas break. She also has a break from her therapies, so it will be very relaxing for her. Abby's OT and I decided last week that she will go to Kids Center once a month instead of once a week from now on. I have lots to work on at home, and she sees an OT at school, so I think that will be enough. She is still getting PT weekly in addition to her school PT. We are not currently getting speech outside of school, but I am sure we will be soon. We are super excited to see Susan Norwell next month. I am hoping to get some direction with Abby's speech at that visit.

I figure Abby will be getting speech, OT, and PT in some form indefinitely. There will be times when she needs one more than others, and times when she may need to take a break. All 3 every week outside of school is difficult to schedule and hard on the wallet. It's hard to decide what can be done by us at home and what needs to be done at a center. I long for the days of First Steps (early intervention). We were so fortunate to have the best therapists working with Abby at our house. Now that she is 3, early intervention is over and any therapies outside of school are private.

It has been a while since I uploaded photos from our phone, so this is kind of a hodgepodge. Abby isn't wearing her glasses because they broke 2 weeks ago and the new ones haven't come in yet. Usually her eyes cross in photos without her glasses, but I think her strabismus might be getting better because she hasn't been crossing them much at all, even without her glasses. Yay!

Abby and Logan helping with the Christmas lights.

How can she fall asleep in the middle of lunch?

Abby was great on the horse this week. She rode backwards, to the side, and facing forward. It's pretty challenging for her, but Michelle sings to her to keep her from getting upset.

We love to look at houses that have completely gone overboard with Christmas lights. This house is one of my favorites. I don't know who they are, but I feel like I should drop a $10 bill in their mailbox to help pay their electric bill. Over-the-top light displays are awesome! Even Logan and Abby couldn't turn their eyes away.

1 comment:

  1. I LOVE the picture of Abby and Logan in the Christmas lights! They are just adorable! And great news about Abby's eyes! :)

    I also love over-the-top Christmas lights (although I'm less enthusiastic about over-the-top inflatables, but to each their own, LOL). We took Eliana and Joshua out looking at lights last weekend and they both loved it.

    I hope you have a great week and a very merry Christmas! :)