We finally got a little information about Abby's falling spells yesterday. I emailed a video clip of an episode to Jane Lane a while back, and she and Dr. Percy got back with us last night. Dr. Percy and Jane Lane run the Rett Clinic at UAB that Abby visits twice a year. They are both experts in all things Rett. It's amazing how well they both "get" our girls(and boys).
After watching the clip, they agree that the spells are not seizures. They are a conscious loss of tone, and are common with Rett. Sigh. Have I said that I hate Rett Syndrome yet today? Probably so, but not in writing. Anyway, Sometimes theses spells are referred to as melting spells. Unfortunately, we still don't know how long they will last, but we're relieved that we can rule out seizures and other medical problems that would cause her to fall. All we can do is work with her therapists to help her regain the strength and balance, and hope the drops are just a phase.
It's hard to just write something off as a "rett thing". Maybe it's still a little denial, but Im always trying to make it something else, something fixable. All these little "rett things" make her diagnosis that much more real. Now that we have some answers though, maybe I can stop obsessing about her walking and her lack thereof....maybe.