tag:blogger.com,1999:blog-2396075454926189031.post1332006789907336728..comments2014-05-09T17:04:30.835-07:00Comments on abby marie: Ann Mariehttp://www.blogger.com/profile/00363526402404082752noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2396075454926189031.post-16213822973041702622010-06-24T04:41:12.706-07:002010-06-24T04:41:12.706-07:00Hugs to youand Abby...Yep I will repeat it too - I...Hugs to youand Abby...Yep I will repeat it too - I HATE RETT SYNDROME! Abby does not deserve this crap - none of our girls do. THinking about you and praying for you!!Kellyhttps://www.blogger.com/profile/13680795280261614317noreply@blogger.comtag:blogger.com,1999:blog-2396075454926189031.post-3837232612288190352010-06-23T08:46:04.727-07:002010-06-23T08:46:04.727-07:00Avery has been doing this too. But it happens so ...Avery has been doing this too. But it happens so fast that I cant be sure she isnt tripping over her feet which happens all the time too. Ill have to pay better attention. i too hate chalking things up to Rett. I want there to be a fixable thing in there too. oh and if you didnt know, i HATE rett syndrome too.Ericahttps://www.blogger.com/profile/17851509745425295624noreply@blogger.comtag:blogger.com,1999:blog-2396075454926189031.post-74150057296398557252010-06-22T20:11:01.381-07:002010-06-22T20:11:01.381-07:00Ahh, Ann Marie. I am sorry it was not the answer ...Ahh, Ann Marie. I am sorry it was not the answer you were looking for. You and Wes have handled this with so much grace and you are such wonderful parents to Abby. I can only imagine how hard this is for you.Lysanahttps://www.blogger.com/profile/11754784644432308587noreply@blogger.comtag:blogger.com,1999:blog-2396075454926189031.post-85194665117519646722010-06-22T19:51:21.603-07:002010-06-22T19:51:21.603-07:00I needed this post today! Leah does the same thing...I needed this post today! Leah does the same thing. I just felt like they weren't seizures, though. She is fine throughout them and fine just after, she just falls out of nowhere! Just drops. So, the conscious loss of tone makes more sense than a seizure to me. And just to make you feel better...I hate Rett Syndrome too. I say it way more than once a day. <br /><br />We need to meet you and Abby. She is the cutest little thing!mjhttps://www.blogger.com/profile/09141031502595666446noreply@blogger.com