Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Monday, December 21, 2009

Merry Christmas..almost

We are in Christmas mode around our house. We celebrated with Abby's Papaw and Memaw yesterday, and made candy with my mom, sisters, and Abby's cousins today. Sometimes Abby gets anxious and upset in these situations, but it has really helped having her DVD player available for her now. It gives her something to do when everyone gets loud or she is not able to move around the way she wants to. She gets into a routine at her grandparents house, and she doesn't like it when a crowd blocks the area where she usually walks and plays. She still walks around and interacts with everyone, but now she can go to the DVD player in a quiter area when she needs to.

While I am SO happy she has taken an interest in her movies, this Little Einstein thing is becoming quite an obsession. Tonight, before dinner she cried for nearly 40 minutes. It came out of nowhere, and she was way too upset to give her choices of what she wanted. Usually, I can figure out what the problem is by offering a snack, drink, sitting her on the potty, or holding her with her favorite blanket. This time, however, she just got progressively more upset the more I tried to comfort her. I put her down to see if she would walk toward what she wanted, but she nearly beat up our Christmas tree. She was getting less sad and more mad by the minute. I decided that it must be her acid reflux and she must be in pain, so I put her in her highchair while I tried to figure out what I could do to make her feel better. Her DVD player was on the table, so I pushed play while I tried to figure out my next step. Well, as soon as her movie came on, she laughed. I couldn't believe it. She had cried so much her face was blotchy. Like I said, this Little Einstein thing is becoming an obsession.

It kind of makes me happy that she is so determined, though. The girl knew what she wanted and wasn't going to stop screaming until she got it (typical 3 year old). The goal is to give her other ways to communicate what she needs, but sometimes, crying is the most effective way for her.

1 comment:

  1. sounds a lot like Avery!! blotchy face and all! she did that yesterday-was beside herself and I didnt know it was because she wanted this photo of her in the play pool at school this summer! she is very into anything pool related-all known as DUCKIE, so when she says duckie, Im like this one? this one? this one? it could be her sunglasses, sun hat, suntan lotion etc...