Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Thursday, December 3, 2009

I am so excited! We have scheduled a consultation appointment in January for Abby to see Susan Norwell, a speech therapist who specializes in treating girls with Rett and other kiddos that are nonverbal with motor impairments. I put a link to her webpage, Focused Learning Solutions, on my sidebar. She has done some amazing work with people with Rett and I can't wait to get some ideas to help Abby communicate. Our appointment with Dr. Percy, in Birmingham, has also been resceduled for January. Dr. Percy and Jane Lane are doing a Natural History Study that involves nearly 1,000 persons with Rett Syndrome. As a part of the study, Abby visits them at UAB twice a year, which is great because we get the opportunity to ask them questions and get their imput. It's going to be a busy month, but I love talking to specialists who really "get" my girl.