Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Sunday, September 11, 2011

Cool Kids!

Fundraising is not my favorite thing, to say the least.  I don't like asking people for money.  If those of us with kids with Rett Syndrome could fund the research needed to save our children ourselves, we would.....gladly.  It's just too expensive for even this very committed community.  We need the support of lots of people. It's just that simple.  Asking people to give up their hard earned money isn't an easy task, though. Thankfully, this year's fundraiser reminds me again how blessed we are to have such amazingly generous people in our lives.

There are several donations to Abby's fundraising page from complete strangers.  Maybe these are families who follow her blog?  Maybe they are in the same line of work as Wes and have stumbled upon his blog with her link?  Again, amazing generosity! We've had donations from old friend and neighbors.  And then there are our family and friends.  Most importantly, they support us by loving and accepting Abby.  We know they celebrate her accomplishments and are praying for a cure.  They participate in the strollathon every year and give to her cause.  We have been blessed with a very supportive family.  Just this week, Abby's cousin, Emily, celebrated her birthday.  Instead of receiving gifts at her party, she asked her friends to make donations to Team Abby.  Wow.  How cool is that?  Her birthday party raised over $300 for Team Abby! I hope Abby makes friends in school who are just as sweet as these young ladies!

Thanks Emily and all the CAL girls!!


  1. brings tears to my eyes! that is SO COOL!!

  2. So proud of Emily! Such a sweet girl!

  3. WOW! No seriously, WOW! I think that it's incredible a bunch of young girls would do that. Even if the birthday girl is Abby's cousin that's still just so lovely and generous. They really are an inspiration.