Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Wednesday, August 17, 2011


Abby has been super excited about kindergarten for weeks.  We've talked and talked about it, and she has made lots of comments on her trial device about kindergarten and her new school.  Very exciting.  Her first day was supposed to have been on Monday, but it was cancelled due to power outages until today.  She woke up in a great mood and was ready to go!  She had a great send off party, with a surprise visit by her Grandpa, Nanna, Nonnie, and Papa Dave.  Only Abby can get such a crowd out at 8:00 in the morning.    
Abby had a lot to be excited about.  She has been placed in a school with a great team of teachers and therapists working with her.  It was a very late placement, but we pulled together a meeting on Friday to go over her IEP and discuss the many things that make Abby.....well, Abby.  I think this team is going to be great!  Her teacher is as excited to have Abby in her class as we are to have her there. She read this blog when she found out the we were interested in her classroom.  How cool is that?  The therapists had lots of great questions at the meeting and I'm confident that Abby will be challenged in this school.  I was so frustrated over the summer about how students are placed in schools in our district.  I found classrooms that I liked, but I didn't feel like my input was taken into consideration.  At the beginning of the summer, I decided that I had done everything I could do in regards to her placement, and I wasn't going to worry about it anymore.  I had a "we'll have to wait and see" mentality.  I just prayed that Abby would go to a school and work with a team the would care for her, keep her safe, and help her learn.  I was so happy when the very school I wanted for her had a spot open up the week before school started.  How wonderful a feeling it is to be able to spend the day with Logan and not have to worry or feel guilty about not being with Abby.  And it was so nice spending the day with Logan.  A little one on one time could be just what he needs.   

Abby was exhausted when I picked her up from school.  She slept on the way home, and took catnaps until an early bedtime.  Its going to take her a while to get used to the long day.  Her teacher said she was happy all day, was successful on the potty and ate well. Yay!  So proud of my big girl!!!  


  1. So... do the teachers frown upon nosy Aunts that want to see what her class is like? I am dying to see Abby in class! I can almost see Abby's face and her expression "oh this is just Aunt Teresa one of the MANY people who adore me!" :-)