Hello. My name is Abby. I'm eight years old and I was diagnosed with Rett Syndrome when I turned two. My parents work hard to help me make sense of the world around me and this blog is meant to help others understand my world and my journey with Rett Syndrome.

Wednesday, November 14, 2012


In the spirit of Thanksgiving, I'd like to write how thankful I am for technology.  This is, by far, not the thing I'm most thankful for, but today it seems pretty important. Not the technology that allows me to make phone calls while browsing the internet, or watch movies and play games, but the technology that makes Abby's life better...and easier.  I'm so thankful for these resources that enable her to communicate.  She uses technology a lot.  It's not unusual for her to use her communication device (Eco2 with EcoPoint) to talk while using a laptop computer to listen to a story.  When she is stressed and over stimulated, she listens to music on my phone to calm her, or interacts with my phone to kill time in a waiting room. Would we survive without these conveniences?  Of course. However, I definitely appreciate the difference they have made in our life. Touch-screens that respond to her touch, even though it is neither refined nor consistent, make her happy.  A communication device that responds to her eye gaze is just amazing.   

Abby and Logan listening to a story on onemorestory.com.  She is using a jellybean switch to turn the pages and commenting on her communication device. 

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