tag:blogger.com,1999:blog-2396075454926189031.post7448602283454597249..comments2014-05-09T17:04:30.835-07:00Comments on abby marie: Ann Mariehttp://www.blogger.com/profile/00363526402404082752noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2396075454926189031.post-31242901033570387942010-07-20T08:00:15.190-07:002010-07-20T08:00:15.190-07:00I had Reagan's meeting last week to get on Wai...I had Reagan's meeting last week to get on Waiver as well. You perfectly described how I felt! It was the worse feeling ever to talk about all of the things she is not capable of doing. :(Dawnhttps://www.blogger.com/profile/12453870945508258690noreply@blogger.comtag:blogger.com,1999:blog-2396075454926189031.post-92052189229139130102010-07-18T08:09:31.171-07:002010-07-18T08:09:31.171-07:00Hi Ann Marie! I found your web blog long story bu...Hi Ann Marie! I found your web blog long story but do you have Medicaid? That is usually the first step in getting help. I live in Louisville as well and they thought my daughter has Retts and it turns out she is missing a small piece of Chromosome 5. Please e-mail me if you would like to get together or I can help you wade through the mess--of course JCPS is next--YIKES and I would love to help you in any way I can--Becky bdunn265@yahoo.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2396075454926189031.post-65892693449963107012010-07-17T10:57:55.958-07:002010-07-17T10:57:55.958-07:00That day will definitely make up for all the bad o...That day will definitely make up for all the bad ones!Ann Mariehttps://www.blogger.com/profile/00363526402404082752noreply@blogger.comtag:blogger.com,1999:blog-2396075454926189031.post-1045545909474316932010-07-16T21:05:55.083-07:002010-07-16T21:05:55.083-07:00yep-we are going thru the same thing now too. We ...yep-we are going thru the same thing now too. We got Avery on our waiver program for CA-barely-but we got it which means we get medi-cal and that opens up way more services. but it is hard to have to focus on each thing they cannot do. I had my appt with our case manager today and avery had to listen to it all too. and of course she was doing things so well! if it gets them what they need then it takes the sting out a little. one day hopefully we will just be saying "oh she USED to have Rett syndrome!" :)Ericahttps://www.blogger.com/profile/17851509745425295624noreply@blogger.com